Conference update: July 2022

Jon will be heading to the Batten Disease Support and Research Association Family Conference which is being held in Cleveland, OH July 8-10, 2022. After 2 years of virtual conferences, it will be great to be able to meet Batten families in person again. If you see Jon there, please do not hesitate to stop him […]

Conference Updates: April 2022

Updates on the upcoming Batten Disease Support and Research Association conference, ENS 2022, WORLDSymposium 2022, and NCL 2021.